Staying on Track: designing a peer-led telehealth self-management intervention for people with newly acquired SCI and their whānau

Research framework

Remaining Healthy

Overview

We aim to develop the content of a telehealth peer-led self-management intervention aimed at preventing secondary health conditions for people with SCI. Within a community-based participatory research methodological approach we will collaborate with people with the lived experience (PLEx) of SCI and their whānau/family, consumer-led advocacy organisations (i.e., peer supporters) and both inpatient rehabilitation and community-based healthcare and rehabilitation service providers.

This project is funded by grants from ANZSCOS and HRC.

Method

We will use a 3-phase co-design research method to,

1. establish a core co-design research team and review white and grey literature to ensure evidence-based and theoretically-based intervention development,
2. interrogate emerging concepts with a broader range of stakeholders via an online survey and purposively sampled focus groups, and
3. ensure knowledge translation, implementation and evaluation processes for the self-management intervention are in place.

Status of Research

• Data Collection Completed
• Analysis underway
• Paper in Presentation

Outputs

The following video was created for the ANZSCoS Conference in October 2021. Hā-i-mano means the voice of many, and in this video you can hear some of the many voices involved in this co-design project. We talk about the project and the constellation of four principles that emerged to guide peer-support for people with SCI as the return home from hospital.